(单词翻译:单击)
Woman's Choice: Hearing or Life? 给我一个月的“有声世界”
To save her life, Jessica Stone had to lose her hearing.
Now to the inpiring story that a young woman faced with a difficult diagnosis. The surgery she needed to save her life would cause her to lose her hearing forever. So how would you spend your last days being able to hear the world? Jessica Stone did it with bravery and grace.
Imagine a symphony of sounds that make up your life, your favourite song, your family's laughter, you dog. Now imagine counting down the weeks, days, hours until every sound disappears.
I'm really at a loss for emotion, freak out at it. To be very blunt, freak out.
Surgery has been a fact of life for 23-year-old Jessica Stone since she was a little girl. But it wasn't until she was 15 that doctors were able to put a name to her disease neurofibromatosis, a rare genetic disorder that causes benign tumors to grow along her nervous system.
The diagnosis was, you know, pretty much like a kicking of god.
Over the years Jessica has had more than 20 surgeries to remove the tumors.
Since this whole thing started eighy years ago, I wanna crawl up , a lot of days in crying and I can't because, I can't do it because she doesn't do it.
Her humors always found ways to make her through and she is a beautiful person inside and out.
She already lost the hearing in her left ear and then this went her devastating news, there is a tumor pressing against her brain stem that has to come out. And the operation that will heal her will also leave her deaf.
You do a surgery that will leave you completely deaf or you take the risk of just stroking one day and dying. And that was her choice.
The deafness thing, I will only, I will find some funky, corky way to make it work for me, to , you know be the, the person in the family that just like, wow, you know, she's deaf but she juts does it so well!
Today marks thirty days in count of my big surgery. . And so in the month before surgery, Jessica sets out to record the sounds that make up her world.
Dig, Doby, dig a hole. . .
Playing her bongos, making her morning smoothy. The hope is one day these images will remind her of the sounds she can on longer hear.
She practices her sign language by learning to sign her favourite song"All We Are" by Matt Nathanson.
Just three weeks before surgery she gets to meet Nathanson at his concert, the last one she will ever hear.
On one hand it's great to meet the person , on the other hand, you know, I have never gonna hear him sing again so , you know it was a definitely emotional thing last night.
With one week left she takes in the gentle warm wind and wave on the beach.
Oh it's gorgeous, it is good to know the waves. .
And then all too soon the day of surgery is here.
It has been a long 30 days and, yeah, very long very. hard.
We talked and laughed and all kinds of things of before, we wanted to get every minute and you know nobody wanted to go to bed and then all of a sudden it's 6 a. m. and you're in the hospital.
That morning in the hospital, tense of emotional moments, one last conversation.
I love you. A final "I love you" and listening one last time to her favourite song as she is wheeled into the operating room.
After 13 hours of surgery relief, doctosr tell Jessica's family the tumor is out and she is doing well. But next morning the new reality. Jessica's first conversation without sound.